Epilepsy: key references
Banerjee PN, Filippi D, Allen Hauser W. The descriptive epidemiology of epilepsy—A review. Epilepsy Research 2009; 85: 31–45.
Devinsky, O., Hesdorffer, D.C., Thurman, D.J., Lhatoo, S., Richerson, G. Sudden unexpected death in epilepsy: epidemiology, mechanisms, and prevention. Lancet Neurol 2016;15:1075–1088.
Fiest, K.M., Sauro, K.M., Wiebe, S., Patten, S.B., Kwon, C.-S., Dykeman, J., Pringsheim, T., Lorenzetti, D.L., Jette, N. Prevalence and incidence of epilepsy: A systematic review and meta-analysis of international studies. Neurology 2017;88:296–303.
Forsgren L., Beghi E., Oun A. et al. The epidemiology of epilepsy in Europe - a systematic review. European Journal of Neurology 2005;12 (4): 245-53. This review estimates that the prevalence of active epilepsy is 4.5-5.0 per 1000 among children and adolescents in Europe, six per 1000 among those aged 20-64 years and seven per 1000 among those aged 65 years and older. Based on European studies annual incidence rates were estimated at 70 per 100,000 among children and adolescents, 30 per 100,000 among those aged 20-64 years and 100 per 100,000 among those 65 years and older.
, , , , . A national study of epilepsy-related deaths in Scotland: Trends, mechanisms, and avoidable deaths. Epilepsia. 2021; 00: 1– 18.
Epilepsy: useful links
Epilepsy Scotland is a Scottish-based charity that campaigns for improvements in services for people with epilepsy in Scotland.
The Joint Epilepsy Council is an umbrella body for voluntary sector organisations working in the epilepsy field in the UK. In September 2011 the JEC published an epilepsy epidemiology summary covering the UK. This summary was based on prevalence figures from the General Practice Research Database (GPRD) and included only people with a diagnosis of epilepsy who were receiving prescriptions for anti-epilepsy drugs.
The Epilepsy Society is a UK-wide organisation providing information and support to people affected by epilepsy and to professionals.
Epilepsy Action (the British Epilepsy Association) is a UK-wide charity for people with epilepsy. It provides a range of information resources for professionals and people with epilepsy.
SUDEP Action is a charity that provides information and support in relation to sudden unexpected death in epilepsy (SUDEP).
The English NHS Choices website has an extensive set of epilepsy resources for patients.
WHO Epilepsy factsheet. This publication provides key facts about epilepsy and related international links.
Please note: ScotPHO is not responsible for the content or reliability of linked websites and does not necessarily endorse the views expressed within them. Listing should not be taken as endorsement of any kind. ScotPHO can take no responsibility for information contained on websites maintained by other organisations or for actions taken as a result of information contained on websites maintained by other organisations.
To report a broken link on the ScotPHO website, please email details to the ScotPHO team of the web page containing the broken link together with the web address you were unable to access.
